Dr. Richard Bruno is Chairperson of the International Post-Polio Task Force and director of The Post-Polio Institute and International Centre for Post-Polio Education and Research at Englewood (NJ) Hospital and Medical Center. His new book, How to STOP Being Vampire Bait: Your Personal Stress Annihilation Program, will be published in 2004. E-mail him at ppsforum@newmobility.com.

Note: This column is for information purposes only and is not intended as a substitute for professional medical advice.

Q: I have constant muscle pain. My therapist says it is a combination of underworked muscles and overworked muscles. Is it possible to go from overuse abuse to underuse abuse? What exercises will alleviate the pain? I can't seem to find a happy medium.

New Mobility link
I agree with your therapist. Muscle pain is often caused by a combination of underworked and overworked muscles, if you define underworked muscles as those weakened or paralyzed by polio and those that are newly weakened. Overworked muscles are your stronger muscles that-while trying to take up the slack for their weaker compatriots-hurt, ache, cramp and spasm.

I have never seen muscles go from overuse abuse to underuse abuse. Many doctors claim that polio survivors' new weakness and fatigue result from deconditioning. They say muscles and nerves get "lazy" and weaker because you don't do enough exercise. Some polio survivors believe that their muscles will deteriorate unless they keep pushing to prevent deconditioning. But beware-deconditioning is one of the red herrings that doctors who know nothing about PPS try to feed you. Deconditioning can occur when a polio survivor is confined to bed for a month. But in 23 years I have seen only two polio survivors who were somewhat deconditioned, and both were severely depressed.

You shouldn't exercise to try to strengthen weakening muscles and prevent underuse abuse, since you'll just make them even weaker. And if you exercise stronger muscles, hoping that they will better compensate for the weaker ones, your stronger muscles-also affected by polio-will get weaker. We see this all the time when survivors report that, after exercising, their "good" leg is now weaker than their "polio" leg. And of course, there's the poor guy who went to the gym to pump up his good leg and it stopped working altogether (PPS Forum, June 2004).

The exercise you can do to decrease pain is gentle stretching. You may have stretched your "heel cord" when you first had polio to allow your foot to land flat on the floor. That's still a good stretch for calf muscles that burn by day or cramp at night. Stretching the hamstring muscle in the back of the upper leg, your low back muscles-and especially the neck muscles-is also helpful.

Ask your therapist to work with you to find a small number of stretches for the specific muscles that hurt. Remember, it's better to stretch a few specific muscles for a few seconds many times throughout the day than it is to stretch many muscles, many times, but only in the morning. Think of stretching as the oil that keeps your muscle "motors" moving. You wouldn't put oil in your car only when you start it up in the morning. Like your car, your muscles need lubrication all day. But with stretching, as with all things, polio survivors need to follow "The Golden Rule:" If stretching causes fatigue, weakness or pain, DON'T DO IT! (Or do much less of it.)

As for finding a happy medium, try Madam Olga at the Minnesota State Fair. She always seems chipper to me.

For Veterans Who Had Polio:
In late 2003 the International Post-Polio Task Force asked Sen. Arlen Specter, chair of the Senate Veterans Affairs Committee, to help polio survivors enrolled in the VA system to get treatment for PPS. We also asked for a way veteran polio survivors could receive benefits by having PPS considered aggravated by military service. We wrote a draft letter describing PPS. Almost a year to the day that we contacted Senator Specter, VA Acting Under Secretary for Health Jonathan Perlin released his letter (IL 10-2004-018) (www1.va.gov/vhapublications/ViewPublication.asp?pub_ID=1203). The letter states that "many specialties need to be aware of PPS, including primary care, neurology, pulmonary and critical care, anesthesia, surgery, and, most importantly, physical medicine and rehabilitation." The letter also states that if local VA hospitals do not have the expertise to treat PPS, "referral to other VA facilities where such expertise resides" or referral to outside experts "needs to be considered." Perlin also includes phone numbers to call if your local VA is not providing adequate care. I will let you know about benefits as soon as I hear.